Every step we take in the 5th Annual CACNA1A Foundation 5K is a step toward hope—hope for better treatments, hope for more answers, and most importantly, hope for a cure. This cause is deeply personal to me because it affects someone very dear to my heart—my 3-year-old granddaughter.
When our family learned of her diagnosis, we were thrust into a world of uncertainty. CACNA1A-related disorders can bring a range of challenges, including movement disorders, epilepsy, and developmental delays. Yet, despite these obstacles, she continues to show us what true strength looks like every single day.
If you know our family, you know we are not strangers to advocating for awareness and research for medical causes, and this fight is no different. We know that progress happens when people come together, and that’s why I’m asking for your support. By participating in the 5K or making a donation, you’re directly contributing to life-changing research and helping families like ours find hope in the face of the unknown. All funds will directly go towards global awareness and much needed research.
Current treatment options for CACNA1A-related disorders are limited, and there is no cure—yet. But with your help, we can change that. Together, we can accelerate research and give children like my granddaughter a brighter future.
Join me in making a difference. Register for the 5K, donate to my fundraiser, or simply help spread the word. Every step, every dollar, and every share brings us closer to a breakthrough.
Thank you for your support—it means the world to my family and so many others.
